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EVIDENCE-BASED PRACTICE 6-3 When Health Care Provider Decisions Clash with Paren

ID: 239995 • Letter: E

Question

EVIDENCE-BASED PRACTICE 6-3 When Health Care Provider Decisions Clash with Parental Preference ach year health care research unravels thesmiling. Since the course/progression of Proteus mystery of previously unknown diseases and conditions; recently, expanded knowledge about becoming more frequent, the primary medical Proteus syndrome has been revealed. This rare congenital and progressive disorder causes so tissue overgrowth (nonmalignant tumors), result dilemma the health care team utilized a four- ing in swelling that compresses nerves, vessels, qadrant ethical decision-making tool taking and organs. Asymmetrical growth of skeletal and into consideration: medical indications (principles soft tissue also produces spinal deformities and of beneficence and nonmalfeasance), patient respiratory compromise. It was a 12-year-old with Proteus syndrome who attracted the at tention of the health care team. Turner (2010)autonomy), and contextual features (loyalty and provides unique insight into two years in the life of this child. These two years reflected a situation in which the care perceived neces- sary for the longevity of the child was in directcare and back to their home to provide a dignified conflict with the traditional cultural beliefs ofdeath. The health care team was severely divided a Chinese family who immigrated to the United about this decision: some felt, for the child's States. Over several years the child deteriorated elbeing, she should return to the foster care from attending school regularly to a nonverbal, home where she was showing emotional improve agitated child exhibiting self-injurious behavior ment, others believed it was a parental decision (head banging, scratching, and banging ofexrelated to the care of a minor child. This dilemma tremities); she was hospitalized seven times. The was taken to the hospital ethics committee for de mother had difficulty physically managing the cision. The committee determined that the rights child; the family had limited financial resources, of the parents superseded the other factors and lived in a small apartment that could not accom the child was discharged to the parental home modate needed care equipment, was unable towith a home care and pain management plan communicate in English, and had no extended- family available; the parents voluntarily placed the solution has ended being a correct one. Once the child in medical foster care syndrome is unknown and hospitalizations were team requested a palliative care consultation. To determine the outcome of the ethical preference (respect for autonomy), quality of life (principles of beneficence, nonmalfeasance, and fairness). When the decisions were made and presented to the parents, they determined it was their familial duty to take the child out of foster This was clearly a difficult decision; however, again in her home environment the child began Over nearly two years in foster care the child mproved significantly. Consistent pain man agement helped to eliminate the self-injurious behavior; mobility improved; she demonstrated the understanding of simple words and began to thrive, smile, make eye contact with her fam ily, and even walk as few feet. She has been at home for two years and her parents seemed quite comfortable with the results: supported by strong cultural ties her mother never stops smiling

Explanation / Answer

Nurses currently are on condition that precaution, teaching, and case administration to a progressively varied patient populace that is dared with a trio of ethnic, language, and health literateness fences. For these patients, ethos and linguistic set the background for the gaining and request of health literateness skills. Yet the treatment prose proposals negligible help in assimilating ethnic and language deliberations into nursing labors to speech patient health literateness. Nurses are in a perfect location to enable the interconnections amid patient culture, linguistic, and well-being literacy in instruction to advance health consequences for ethnically varied patients. They commence by recitation key rapports that help as contextual for the resultant conversation explanation how ethos and linguistic need to be careful in any communication intended to speech health literateness for socially diverse patients.

They then deliberate the inter associations amid health literacy, philosophy, and linguistic. Next pertinent ethnic concepts are presented as extra related. This is shadowed by an account of how literateness services are pretentious by philosophy and linguistic, a memo about socially varied, native-born patients, and a performance of situation instances exemplifying how philosophy and linguistic fences are seen in patients’ healthcare knowledges. The writers accomplish by contribution references for promoting health literateness in the attendance of national and verbal fences and noticing the essential for nursing interferences that fully assimilate health literateness, ethos, and linguistic.